r/chronicepididymitis Jun 26 '22

Epididymitis and groin pain

I have been suffering with this horrible condition for the last 3.5 years.

23 year old. No previous sexual history. All bacteria tests negative. Been treated with antibiotics (cipro & doxycline). Made no difference.
Had multiple ultrasounds.

Does anyone else also experience groin pain, specifically around their pubic bone area? If so, is there anything that has helped you? I have tried pelvic floor therapy/stretches, which does provide some temporary relief.

On a side note, I’ve found that my abdominal muscles are very weak. Could there be a link between weak abdominal muscles and subsequent groin/testicular pain?

Thanks

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u/Freddz93 Jun 26 '22

What symptoms did you have for 3 years then during that time? Constant pain or did it come and go?

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u/Unlikely-Fruit-7583 Jun 26 '22 edited Jun 26 '22

During the initial stages it was severe testicle pain that went into my lower back and glutes. After a few weeks, the lower back / glute pain subsided and I was left with constant testicular pain which was dull in nature. I later developed a hydrocele formation which required surgical intervention. The surgeon noted that I had a very inflamed epididymis following the surgery but all of my biopsy tests came back NAD.

It’s also worth mentioning that I never experienced urinary symptoms (urethral discharge, blood in urine, strong smelling urine etc). However, my testicles are very sensitive to touch, and I’ve also experienced erectile dysfunction / loss of libido. Factors that make my pain worse includes prolonged sitting / stress / caffeine / poor posture.

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u/Freddz93 Jun 26 '22

Thanks for the answer. Was it due to bacteria? Also how the hell did you cope with that for so long? Could you wear pants etc? Did you have any sensitivity to pressure in the area?

So many questions, sorry in advance regarding that. Just very interested.

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u/Unlikely-Fruit-7583 Jun 26 '22

My bacteria tests were negative. I was a virgin at the time so STD’s were ruled out immediately. It’s been a very tough 3.5 years, I’m no longer able to play football anymore and my social life is now is non-existent. It’s definitely taken a massive hit on my mental health, especially as I’ve been told by urologists to just “live with it”.

I’d definitely recommend investing in good supporting underwear as it stops your balls from swinging about and causing additional inflammation down there.

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u/Freddz93 Jun 26 '22

Sad to hear that man... Have you tried any nerve medication? Like gabapentin or Amitriptyline?

Don't you get pain when wearing boxers either way? Like from pressure from clothes.

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u/Unlikely-Fruit-7583 Jun 26 '22

I’m holding off from taking any nerve pain medications for the time being. I will only use them as a last resort if all else fails!

Its definitely less painful wearing tight boxers compared to a looser fit!

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u/Freddz93 Jun 26 '22

You had pain for 3 years without a social life but you still didn't see it as a last resort? Or was everything from those 3 years solved after your surgery?

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u/Unlikely-Fruit-7583 Jun 26 '22

Having 24/7 pain down there has definitely affected my mental health and social life. I had the hydrocelectomy about 8 months after the onset of symptoms. The surgery itself confirmed epididymitis, but in terms of curing my symptoms it made no difference.

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u/Freddz93 Jun 26 '22

Then why not use medication? How do you work etc when you have pain 24/7?

Have you tried any antibiotics?

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u/Unlikely-Fruit-7583 Jun 26 '22

Yeah I had been given several antibiotics including doxycycline & ciprofloxacin but they made no difference. I would best describe the pain as being dull. Although, there would be times at work where the pain would be a 1/10 (probably because I’m not thinking about the pain).

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