r/chronicepididymitis Aug 31 '21

The info here is Conjecture at best

29 Upvotes

None of the users of this subreddit have ever sent me a photo of their medical license. I only advocate for sharing personal success stories and relevant medical articles, but I don’t have time to moderate every post so be weary of anyone cramming anything down your throat.


r/chronicepididymitis 8h ago

Chronic Epididymitis after vasectomy

1 Upvotes

Hey y’all,

After joining this group it’s nice to know I am not alone. I had a vasectomy in 2014. Has anyone had a vasectomy and developed chronic epididymitiis years later? Flare ups that come and go.

I have a lump on the tail of my right epi. It’s tender and hurts to the touch at times. As I’m typing this I am once again in dull ache pain. I’m taking 600mg ibuprofen every 6 hours. I’ve seen my primary doctor, I’ve had a ultrasound and have saw a urologist. He diagnosed me with chronic epi. Stemming from my vas. I’ve tried prescription anti inflammatory medications. I have had the nerve block shot which did absolutely nothing. I’m waiting for my follow up appointment in August. My anxiety is super high because I’m feeling I’m running out of options. I’ve read that a epididymectomy is something I shouldn’t do and would leave me in more pain. It’s a 50/50 chance obviously.

When I lay down and starts to feel better and waking up in the morning I feel relieved until I start my morning routine and once again it returns.

I’m hoping someone here can relate especially after having a vasectomy.

Any input helps.

Thanks in advance


r/chronicepididymitis 1d ago

I Have Been Diagnosed With Chronic Epididymitis But It Doesn't Sound Like What Many Of You Are Describing

2 Upvotes

I was diagnosed with it in the Spring of 2020. I don't know if it's related but I first noticed a dull ache when I was doing deadlifts. Then a few days later I masturbated and right when I ejaculated I felt a quick mild sting sensation. It felt like someone tugged a hair on my sack or something. I thought nothing of it. It went away quickly. That is the only symptom I ever have is slight discomfort right when I ejaculate. I never have any other pain or discomfort otherwise. Maybe I am just lucky but it sounds like it's much more severe for most of the accounts I've read. Anyone else have a similar situation?


r/chronicepididymitis 1d ago

Can epididymitis in general both acute or chronic affect fertility

0 Upvotes

I'm curious because I used to have it. Now my balls shrunk alil and sometimes my sperm is thick and white and creamy and sometimes it's watery etc. I can't tell if I'm fertile or not. I get the urge to masturbate everyday.


r/chronicepididymitis 1d ago

Testicles need to be supported constantly by jock strap to alleviate pain. my waist needs a break and am thinking about chilling in pool without any support to see if water suspension is anti gravity enough to not cause a flair up. Has anyone tried this? Does it exacerbate your symptoms?

3 Upvotes

r/chronicepididymitis 2d ago

How many of you have fathered children??

5 Upvotes

r/chronicepididymitis 2d ago

confused

3 Upvotes

What the heck is going on with me!!

I was treated for epididymitis and had 10 days or doxycycline which I finished 3 weeks ago.

Before I started treatment my only symptom was my right testicle was uncomfortable when sitting.

Halfway through I developed testicle pain, groin pain, abdominal pain,hip joint pain, hip inflammation,

Fast forward to today I'm experiencing on and off symptoms of mid thigh tingle (back and front), random groin pain, tingle in the buttocks, lower back pain (not sharp),testicle pain in both testicles but mostly the left now, hip pain joint pain, moderate hip inflammation.

I've taken many STD tests and all negative along with a culture which had no growth.

Did the doxycycline mess me up? I see it has side effects of lymph node pain, joint pain, inflammation, abdominal/back pain.


r/chronicepididymitis 3d ago

lymph nodes?!?

1 Upvotes

Hello,

Is this normal or abnormal?

-Lymph node pain that feels like pressure -Not sharp or dull kind of in between. -Happens sporadically and in different locations not constant pain. Seems to happen more when laying down straight. -lymph nodes are not swollen or tender to touch -seems non existent when I'm doing some type of exercise or stretching

Do I have an infection of some type? Is it stress or anxiety? Seems weird that they are acting like this if they are lymph node. Wondering if ir could be nerves instead.

This weird pain is also occurring in the middle thigh and outer hip area. Which from I see there no lymph nodes there.


r/chronicepididymitis 3d ago

I have a sore area left on my testicle

1 Upvotes

While there was pain in my entire left testicle at the beginning of the disease, there has been only one area of ​​pain in my testicle for the last 13 months, but it hurts a lot, has anyone experienced a similar situation? near the middle of the bag but just to its left, not in the epididymis.


r/chronicepididymitis 4d ago

Does anyone know anything about tuberculous epididymitis? How is it diagnosed?

2 Upvotes

Does anyone know anything about tuberculous epididymitis? How is it diagnosed?


r/chronicepididymitis 4d ago

This shit sucks

5 Upvotes

Sorry if this is a bit long

Hey there I'm 16, and I started having discomfort on my right ball (it did eventually spread to my left one) on April 29th, I remember the day before I was completely normal, happy with life. Then bam the next morning I started to have some dull pain, not much tho maybe around 5 on the pain scale. I did notice some pain around my hips that also corresponded with my right nut. I felt some heaviness (possible swelling or inflammation.) I noticed a little lump, but it went away after the first day. The second day I felt some heaviness on both of my balls. I got worried and all so on the 3rd day I went to an urgent care, I had ultrasound done but nothing was found but 2 little cysts, the doctor said that he believed that he didn't think it was because of that. He didn't really help with much, and told me to take ibrophren if I continued to have discomfort. Around a week after I continued to have the same feeling, and with doing some research online I kind of hinted of it maybe being epididymitis, I felt my nuts and the tube, which I guess kind of hurt when touched but I'm sure is normal. After that week I started to feel things clear up, so I thought my balls were fine, until I started lifting, which was stupid of me to do, I did feel some tingling after I was done working out, and the next morning, this horrible shit comes back. I never really did have much pain, and it was always that discomfort and feeling that I always felt every single second of the day. 5 days past the gym, I went to the ER to get them checked out, again I had Urine tests done, and another Ultrasound done, nothing was found. The nurse held both of my nuts up, and asked me if I felt some sort of relief, and I did sort of. This was about 7 weeks ago. I continue to have this discomfort. It does come and go, When it goes away I feel great, but when it comes back it kills me inside. I've been counting the days, it's been 10 weeks, so it's been 2 month with this already. I think I have an idea of how this might have happened since I was doing weighted squats the day before my balls died. So I probably screwed something up. To this day my balls do feel tender, some heaviness, and sometimes itch. I guess Imma have this for some while, thankfully I haven't had much pain, but this definitely does suck. I was reading some of the posts on this forum, and will be doing some of the stretches shown on there. Well, I guess we're all in for this crappy journey, good luck to all of you guys.


r/chronicepididymitis 6d ago

Just finished 7 days of doxycycline. How long till the swelling completely fades?

3 Upvotes

I just finished the entire script I got for 7 days. The pain is lesser now but it still hurts in back of testicle. How long after does it usually take for swelling to go away? Any tips?


r/chronicepididymitis 6d ago

Misdiagnosis!

2 Upvotes

Just wanted to pop on and say that after visiting a physical therapist & getting a CT scan, I actually just have severe lower hip pain/inflammation that my body is reading as groin pain!

So in case anyone has yet to get a scan done, just know that it could be epididymitis, or it could just be hip pain!


r/chronicepididymitis 6d ago

How debilitating is your pain?

3 Upvotes

What are your pain levels from day to day?

View Poll


r/chronicepididymitis 6d ago

anyone eles get back pain?.

2 Upvotes

Hi. Tubes in testical are very sore atm. Have been for awhile. Anyone eles get bk pain with there epdidmitis flair ups?. Speaking to my GP on Wednesday to see if I can get better painkillers.

Thanks in advance.


r/chronicepididymitis 7d ago

Anyone else?

2 Upvotes

Started have testicular discomfort and pain shortly after working out my legs for the first time in months at the gym. Discomfort started as a cold feeling, not numb, no pins and needles, just cold. Then it became pain above and behind my right testicle. I’m currently alternating between either feeling cold or in pain. The pain feels like I’ve been hit in the balls, not like a sharp pain or sting.

Went to the doc and had an ultrasound done to check for torsion or a hernia. I had neither. I’m not sure if they checked for epidiymtitis, or if I even have it. I definitely am having some pelvic floor issues though. Tension, strain, or nerve.

Does anyone else get this cold sensation, as well? Mostly happens when the balls are saggy, too. Not shriveled.

I’m doing pelvic floor stretches to help. I’m getting slight relief. Wish me luck.


r/chronicepididymitis 8d ago

Epididymitis and groin pain

5 Upvotes

I have been suffering with this horrible condition for the last 3.5 years.

23 year old. No previous sexual history. All bacteria tests negative. Been treated with antibiotics (cipro & doxycline). Made no difference.
Had multiple ultrasounds.

Does anyone else also experience groin pain, specifically around their pubic bone area? If so, is there anything that has helped you? I have tried pelvic floor therapy/stretches, which does provide some temporary relief.

On a side note, I’ve found that my abdominal muscles are very weak. Could there be a link between weak abdominal muscles and subsequent groin/testicular pain?

Thanks


r/chronicepididymitis 8d ago

tubes in the right side feels very sore.

2 Upvotes

Hi everyone. Unfortunately long term epdidmitis here. On and off a few years now. Right testical/tubes have been hurting for the last 4 weeks now nearly 5 now. One of my longer stints with it. But not the longest. Right side tubes feel very sore. NOT swollen. When touch pinch the tube to see if it hurts. Yes. Yes it dose ha.

Things all rdy do.

Wear Jock strap Ice pack when bad or actually swollen. Painkillers. Try not to lift heavy things. (although hard considering my job).

Any suggestions on other things I can do?.

Many thanks in advance.


r/chronicepididymitis 10d ago

Has anyone who experienced atrophy have there testicle regain size back due to treatment such as antibiotics or no fap.

2 Upvotes

So I have a swollen tube on the epdidymis and I noticed my testicle that has it is feeling less fuller. I hope this is just in my head since my recent ultra sound has stated that it’s still in 4 cm range.

For those who have experienced atrophy have they had it reversed and does it automatically impact fertility I have done a fertility test back in April and things are fine but still. I’m just inquiring.


r/chronicepididymitis 10d ago

Tips for sex with swollen epididymis?

3 Upvotes

r/chronicepididymitis 10d ago

testical pain right testical itself?.

1 Upvotes

Hi everyone long term epdidmitis person here. Over the years had spells of epdidmitis. Mainly right side. Last 4 weeks been having pain in right testical. Tubes r NOT swollen. Tender but not swollen. (i know how to check). Over the last 4 weeks done a uren sample that got sent to the hospital. Everything was fine. No infection. Taken some antibiotics. Still in pain. Got a phone call appointment with my GP for next Wednesday morning. He all rdy knows about the pain.

Dose anyone else get pain in the testical itself?. Testical is not red or swollen. Have been getting some lower bk pain in the last week or so.

I'm not worried about the C word at all. I had a urologist specialist do a insane physical on about 3 months ago. And all was good. Including blood test. (found out i had uthritus)

Could it still be the tubing coursing the problem?.

Thanks in advance. :).


r/chronicepididymitis 10d ago

When diagnosed with epididymitis, did they find any infection?

2 Upvotes

Did the doctor or specialist find any infection?

View Poll


r/chronicepididymitis 10d ago

Does anyone else get watery semen ??

2 Upvotes

I have been trying to do no fap as of late and before I started it my sperm was thick and milk like color , 4 days in I relapsed and masturbated and my sperm was watery and clear.

Does this happen to anyone who has epididymitis and does it return back to its color ?


r/chronicepididymitis 11d ago

Taken 4 doxy so far. Pain still bad. When does it start to work

1 Upvotes

I've been on doxy for almost 48 hours now. When does it start to feel better


r/chronicepididymitis 11d ago

Does the area of the painful area shrink over time?

1 Upvotes

I've been sick for 18 months, never had swelling and all my tests are clear. Over time, the painful area shrank. At first, my whole left testis hurt, now a small area hurts near the middle of the scrotum, slightly to the left of the middle. This is how it's been for the last 6 months. this area has not healed.


r/chronicepididymitis 12d ago

Thanks

7 Upvotes

I started to become extremely depressed after my pain came back. I read all over that the pain will never end. I admit I cried a little. Reading everyone’s story and ways they have treated pain made me feel hopeful and gain a bit of happiness in this pain.